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Becoming a mom is one of the most transformative times in a woman’s life, and with it often come significant changes—physically, emotionally, and mentally. For moms with endometriosis, a condition already known for its painful symptoms and impact on well-being, the postpartum journey may hold additional challenges. Recently, new research presented at the American Society for Reproductive Medicine’s 2024 Scientific Congress has highlighted an increased risk of certain psychiatric disorders during the postpartum period for women with endometriosis. Here’s what this means and how to find support.

The Link Between Endometriosis and Postpartum Mental Health

Endometriosis, which affects 6-10% of women worldwide, is a complex condition where tissue similar to the uterine lining grows outside the uterus, causing chronic pain and often impacting fertility. This condition has also been linked to depression, anxiety, and other mood disorders. The recent study of over 200 million women from 67 healthcare organizations showed that new moms with endometriosis are at a higher risk for:

  • Postpartum depression (25% more likely to be diagnosed)
  • Postpartum mood disturbances (85% more likely)
  • Anxiety (44% more likely)
  • Obsessive-compulsive disorder (OCD) (26% higher risk)

For moms who entered pregnancy with endometriosis but without preexisting depression, the study found even more distinct patterns in mental health risks. Women with endometriosis but no preexisting depression had a 17% higher risk of postpartum depression and a nearly doubled risk of OCD and mood disturbances.

Dr. Anna Modest, one of the study authors, highlighted the unique impact of endometriosis on maternal mental health. “Perinatal and maternal mental health can have a huge impact on children and their family — we need to better understand who is at risk for challenges in the postpartum period,” she noted.

Why Is Endometriosis Linked to Mental Health Challenges?

Endometriosis is a long-term health condition that often takes years to diagnose, leaving many women feeling misunderstood and unsupported. Dr. Daniel Ginn, who treats women with endometriosis, noted that the emotional toll of the disease may stem in part from this experience. He explained that many patients “focus heavily on learning about their condition, coming into office visits with binders full of test results and information in an effort to understand and manage it themselves.”

This drive for control often comes from years of feeling dismissed or unheard by healthcare providers. Over time, this emotional exhaustion can translate into anxiety or even obsessive-compulsive tendencies as women try to manage their symptoms.

Finding Support During the Postpartum Period

If you’re a mom with endometriosis, this information may feel overwhelming, but it’s also empowering to understand what you might face and to know you’re not alone. Here are some steps to help protect your mental health during this transition:

1. Talk to Your Healthcare Provider Early: If you have endometriosis, share this information with your healthcare provider and discuss the possibility of additional postpartum mental health support.

2. Set Up a Support Network: Surround yourself with a circle of friends, family, or a moms’ group that understands the unique challenges you may face. The New Mom School community is here to help, offering connection and resources for new moms in all stages of postpartum.

3. Look Out for Signs of Mental Health Challenges: Feelings of sadness, irritability, anxiety, or obsessiveness may be common in early motherhood, but if these feelings persist, trust your instincts and seek support.

4. Practice Self-Compassion: Endometriosis adds another layer to your journey. Remember, there’s no “perfect” way to be a mom, and it’s okay to prioritize your well-being.

5. Reach Out for Professional Help When Needed: From reproductive psychiatrists to therapists trained in postpartum mental health, specialized support is available. Talking to a professional can make a significant difference in helping you feel supported, empowered, and cared for.

You’re Not Alone

Motherhood is full of unique challenges and joys, and for women with endometriosis, this journey may come with added layers. At New Mom School, we’re here to remind you that seeking help and connection is a strength. You’re navigating a complex experience, and you deserve a network that understands and supports you every step of the way.